Rights at the centre: On children’s right to protect their genetic information

Rights at the centre: On children’s right to protect their genetic information

• The interest of the child must be the focus always, not just in custody disputes 
• In 1959, the United Nations General Assembly adopted the Declaration of the Rights of the Child, the first charter of its kind ensuring basic rights to all children below 18 years, with these words: “Mankind owes to the child the best it can give.” Yet, as is well-documented, children, because of their vulnerability, often become victims of abuse of power by the very people who are entrusted with their protection. 
• The advancements in digital technologies have helped on many fronts, from registration of births, creating a legal identity to health care, but in its forward march, it should not trample on the rights integral to a harmonious upbringing of a child. 
• Leaning on a child’s fundamental right to privacy, the Supreme Court of India has ruled that children cannot be mechanically subjected to DNA tests in each and every case between warring parents as a shortcut to establishing infidelity. In a petition filed by a man who questioned his second child’s paternity, Justices V. Ramasubramanian and B.V. Nagarathna observed that genetic information sheds light on a person’s essence, going to the very heart of who she or he is.
•  This “intimate, personal information” is part of a child’s fundamental right, the Court said. Children have the right, it pointed out, not to have their legitimacy questioned frivolously before a court of law.
• Directing courts to acknowledge that children must not be regarded as material objects, and that they be subjected to forensic/DNA testingonly as a last resort particularly when they are not parties to a divorce proceeding, Justice Nagarathna observed that it is imperative that children do not become the focal point of the battle between spouses. While this is a welcome move, a reading of the 1989 United Nations’ Convention on the Rights of the Child shows that there are miles to go before every child in India is guaranteed “special care and assistance”. Too many childhoods are cut short, and the maxim ‘every child has every right’ often forgotten.